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Prader Willi Syndrome Awareness Month day 31: Today is the last day of PWS awareness month. I hope you have learned a little bit about this genetic condition. I’m still learning what it will look like for Sandy Kay. I always say I’m a Sandy Kay expert. That’s it! I am friends with many PWS parents who have incredible knowledge and I pull on that knowledge all the time. It’s so good to have community. As Sandy Kay’s advocate, I have to learn everything I can in order to train her up in the way sh
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Hope in Action - Finding Strength in Community 🩵🎥 As parents to seven-year-old Zahra, who is living with PWS, Pia and David Dorson know how essential support and community truly are. In this Hope in Action video, they share how PWSA | USA has been there for their family - from education and IEP guidance to counseling, advocacy, and connecting with other parents who understand the journey. Your tax-deductible donation to the 2025 Angel Drive (no matter the size) helps ensure families like Pia a
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